Hereditary Cancer

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Newly Diagnosed with Hereditary Cancer?

start your cancer education here

If you or a loved one has been diagnosed with hereditary cancer, it's important to gather as much information as possible to navigate your cancer journey effectively. At American Cancer Fund, our goal is to provide you with essential knowledge about leukemia such as symptoms, risk factors, and the latest research advancements to help you become an active participant in your care.




What Is Hereditary Cancer

The best time to beat cancer is before you get it.

It is generally accepted that 5-10% of all cancers are hereditary. This means that mutations in specific genes are passed from one blood relative to another. Individuals who inherit one of these abnormal genes have a much greater chance of developing cancer within their lifetime and at an earlier age.

The genetic tests for cancer are either a simple blood test or saliva sample, however the tests may be expensive. Federal law (passed in 1996) prohibits the use of genetic testing to inhibit your access to medical insurance. In other words, no insurance company can deny you benefits if you carry the cancer gene. Genetic discrimination is illegal. Genetic counselors suggest that the person already diagnosed with cancer be the first one tested.

Feel prepared for every appointment

Carrying the right information can empower you during your cancer care journey. Use these tools to help organize this information so you can be an active participant in your cancer care.

Keep them handy for use at home and bring them along to your doctor visits and other medical appointments.

#KnowCancer Tip

Update your information and checklist after each appointment to keep track of your progress and prepare for your next visit. Being organized is a key step in navigating your cancer care with confidence.

Essentials Checklist

  • Important Contacts: Include your healthcare team's phone numbers and email addresses.
  • Health and Treatment History: A brief summary of your diagnosis, treatment plans, and any past procedures or surgeries.
  • Copies of Reports: Bring recent blood tests, pathology reports, and any other relevant medical records.
  • Calendar: Your schedule of upcoming appointments, treatments, and tests.
  • Progress Notes: Observations about your symptoms, side effects, and any changes in your condition.
  • Questions: A list of questions or concerns you have for your healthcare provider. Don't hesitate to ask anything that's on your mind.
  • Insurance Information: Your insurance card and any necessary authorization forms or documents.

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